2 posts tagged “pamidronate”
So of course, it's summer, and holidays have begun.
I'm receiving my dose of pamidronate for these 3 days, as I should be. Bit of a hitch yesterday with it, as I was turned away, but today all is well.
Anyway, I'll be going to stay with my mom and Ken, and also at some point, with my dad and Jeanne. I'm leaving, on Saturday, immediately after my pamidronate treatment has concluded, given all goes well.
Anyway, I got some pictures today, so I'll upload them.
Just figured I'd throw a brief post together.
Anyhow, also like to comment that the nurse, Sheena, is very good at what she does, and makes this a lot easier.
Anyway, that's it. Seeya!
Well, the time has come yet again for me to get my quarterly dose of Pamidronate. I'm sure you'll wonder what that is so I'll explain. As is mentioned in my profile and perhaps in another blog post farther down the page I'm not sure, I have Osteogenesis Imperfecta. That translates to Brittle Bones. Anyway, there is no known cure for the bone disorder, but there are drugs that can be taken to help with it. The one that I've come across is known as Pamidronate. To understand how it works you must know, that your body always gets rid of old dead bone and what not and regenerates it with new and stronger bone. Well so does mine, but that makes my bones thinner and having an already weak bone AND a thin bone is a bad idea for me. So what pamidronate basically does is it keeps my body from getting rid of the old bone as much, therefore letting my bones become thicker and denser. They're just as weak as always, but they're thicker. Anyway I started this treatment the day after my 13th birthday. I get the treatment every 3 months for 3 days. It's an IV drip just in case you wondered about that. Anyway, the drip takes about 3 hours each day to complete once it actually starts. So I guess the magic number in this case is 3 eh? Well, anyway, I'm getting the treatment this week on Wednesday, Thursday and Friday. It doesn't really have any negative side effects on me that we can see - well it did on my first treatment but it usually does the same thing to some extent to anyone who's on the drug. It made me very tired like so tired I slept for about 18 hours straight. However, after the first 6 months (2 treatments) of being on pamidronate the bone density in my spine increased by 37% which was excellent since I'd broken my spine twice in like a year (not good lucky I'm not paralyzed) and I grew several inches. My bone density has since decreased a bit but that is easily attributed to my increase in growth speed. Anyway, since the first time it hasn't really negatively effected me, except that it stresses me out so that I DO get kind of overtired for the 3 days I'm getting it. I hate missing school especially being in two grade 10 courses when I'm actually in grade 9. I'm almost done with school for the year though. This week and next week are my last weeks of school. Then I've got exams on the 19th I believe as well as the 25th and 26th. That will be fun I'm sure...
Oh before I leave, I've discovered another band which I seem to like thanks to a kid I was talking to at my bus stop this morning. The band is called Stone Sour, it's got the lead singer of Slipknot and other members of Slipknot in it.
Anyway, now I'm going to end my post so I'll talk to you all later!
